Progressive Supranuclear Palsy

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Progressive Supranuclear Palsy is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Summary

Progressive supranuclear palsy (PSP) is an uncommon degenerative neurological disorder that causes progressive impairment of balance and walking; impaired eye movement, especially in the downward direction; abnormal muscle tone (rigidity); speech difficulties (dysarthria); and problems related to swallowing and eating (dysphagia). Affected individuals frequently experience personality changes and cognitive impairment. Symptoms typically begin after age 60 but can begin earlier. The exact cause of PSP is unknown. PSP is often misdiagnosed as Parkinson disease, Alzheimer disease, corticobasal degeneration and other neurodegenerative disorders.

Introduction

Drs. John C. Steele, J.C. Richardson and J. Olszewski identified progressive supranuclear palsy as a distinct neurological disorder in 1963.

Supporting Organizations

Association for Frontotemporal Degeneration (AFTD)

Radnor Station Building #2, Suite 320
290 King of Prussia Road
Radnor, PA 19087
Tel: (267)514-7221
Tel: (866)507-7222
Email: info@theaftd.org
Website: http://www.theaftd.org

CurePSP: Foundation for PSP l CBD & Related Brain Diseases

30 E. Padonia Road, Suite 201
Timonium, MD 21093
Tel: (410)785-7004
Fax: (410)785-7009
Tel: (800)457-4777
Email: info@curepsp.org
Website: http://www.curepsp.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Website: http://www.ninds.nih.gov/

Parkinson's Disease Foundation, Inc.

1359 Broadway
Suite 1509
New York, NY 10018
Tel: (212)923-4700
Fax: (212)923-4778
Tel: (800)457-6676
Email: info@pdf.org
Website: http://www.pdf.org

Progressive Supranuclear Palsy Association UK

PSP House
167 Watling Street West
Northamptonshire, NN12 6BX
United Kingdom
Tel: 1327322410
Fax: 1327322412
Email: psp@pspassociation.org.uk
Website: http://www.pspeur.org/

UCSF Memory and Aging Center

350 Parnassus Avenue
Suite 905
San Francisco, CA 94117
Tel: (415) 353-2057
Fax: (415)476-4800
Email: mgeschwind@memory.ucsf.edu
Website: http://www.memory.ucsf.edu

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  1/27/2014
Copyright  2014 National Organization for Rare Disorders, Inc.