Primary Orthostatic Tremor

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Primary Orthostatic Tremor is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Summary
Primary orthostatic tremor is a rare movement disorder characterized by a rapid tremor in the legs that occurs when standing. The tremor disappears partially or completely when an affected person is walking or sitting. Individuals with primary orthostatic tremor experience feelings of unsteadiness or imbalance. The tremor is sometimes described as causing "shaky legs" and can cause affected individuals to immediately attempt to sit or walk because of a fear of falling. In many cases, the tremors become more severe over time. Primary orthostatic tremor is a constant problem that can affect the quality of life of affected individuals. The exact cause of primary orthostatic tremor is unknown.
Introduction
Primary orthostatic tremor was first described in 1984 by Heilman. There is controversy within the medical literature regarding whether primary orthostatic tremor is a variant of essential tremor, an exaggerated physiological response to standing still or a distinct clinical entity.

Supporting Organizations

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

Movement Disorder Society

555 E. Wells Street
Suite 1100
Milwaukee, WI 53202-3823
Tel: (414)276-2145
Fax: (414)276-3349
Email: info@movementdisorders.org
Website: http://www.movementdisorders.org

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Website: http://www.ninds.nih.gov/

OT Resource

Email: gloria@orthostatictremor.org
Website: http://www.orthostatictremor.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  7/17/2015
Copyright  2014 National Organization for Rare Disorders, Inc.