National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Pediatric Cardiomyopathy is not the name you expected.
Pediatric cardiomyopathy is a rare heart condition that affects infants and children. Specifically, cardiomyopathy means disease of the heart muscle (myocardium). Several different types of cardiomyopathy exist and the specific symptoms vary from person to person. In some affected individuals, no symptoms may be present (asymptomatic); in many people, cardiomyopathy is a progressive condition that may result in an impaired ability of the heart to pump blood; fatigue; heart block; irregular heartbeats (tachycardia); and, potentially, heart failure and sudden cardiac death.
Cardiomyopathy may be termed ischemic or nonischemic. Ischemic cardiomyopathy refers to a lack of blood flow and oxygen (ischemia) to the heart and this often results from hardening of the arteries (coronary artery disease). Nonischemic cardiomyopathy refers to structural damage or malfunction of the heart muscle. Nearly all patients with pediatric cardiomyopathy have the nonischemic type. This report deals with nonischemic pediatric cardiomyopathy.
Cardiomyopathy may also be termed primary or secondary. Primary cardiomyopathy occurs by itself or for unknown reasons (idiopathic). Secondary cardiomyopathy occurs secondary to a known cause such as heart muscle inflammation (myocarditis) caused by viral or bacterial infections; exposure to certain toxins such as heavy metals or excessive alcohol use; or certain disorders that affect the heart in addition to additional organ systems. According to the Pediatric Cardiomyopathy Registry, approximately 79 percent of pediatric cardiomyopathy is idiopathic.
Cardiomyopathy has traditionally been divided into three basic subtypes based upon the specific changes within the heart. These subtypes are: dilated, hypertrophic, and restrictive. There are several other less common forms such as arrhythmogenic right ventricular dysplasia, noncompaction, and others where it is controversial whether they are subtypes of the three principle forms or should be considered as completely different diseases.
American Heart Association
- 7272 Greenville Avenue
- Dallas, TX 75231
- Tel: (214)784-7212
- Fax: (214)784-1307
- Tel: (800)242-8721
- Email: Review.firstname.lastname@example.org
- Website: http://www.heart.org
- Chiltern Court, Unit 10
- Asheridge Rd Ind
- Chesham, HP5 2PX
- United Kingdom
- Tel: 4401494791224
- Fax: 4401494797199
- Tel: 8000181024
- Email: email@example.com
- Website: http://www.cardiomyopathy.org
Children's Cardiomyopathy Foundation
- PO Box 547
- Tenafly, NJ 7670
- Tel: (866)808-2873
- Fax: (201)227-7016
- Email: firstname.lastname@example.org
- Website: http://www.childrenscardiomyopathy.org
Congenital Heart Information Network (C.H.I.N.)
- P.O. Box 3397
- Margate City, NJ 08402-0397
- Tel: (609)823-4507
- Fax: (609)822-1574
- Email: email@example.com
- Website: http://www.tchin.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
Hypertrophic Cardiomyopathy Association
- 18 East Main St.
- Suite 202
- Denville, NJ 07834
- Tel: 973-983-7429
- Fax: (973)983-7870
- Tel: (877)329-4262
- Email: firstname.lastname@example.org
- Website: http://www.4hcm.org
Irish Heart Foundation
- 50 Ringsend Road
- Dublin, D04 T6X0
- Tel: 35316685001
- Fax: 35316685896
- Email: email@example.com
- Website: http://www.irishheart.ie
Kids With Heart ~ National Association for Children's Heart Disorders, Inc.
- 1578 Careful Dr.
- Green Bay, WI 54304
- Tel: (920)498-0058
- Fax: (920)498-0058
- Tel: (800)538-5390
- Email: firstname.lastname@example.org
- Website: http://www.kidswithheart.org
Little Hearts, Inc.
- P.O. Box 171
- 110 Court Street, Suite 3A
- Cromwell, CT 6416
- Tel: (860)635-0006
- Fax: (860)635-0006
- Tel: (866)435-4673
- Email: email@example.com
- Website: http://www.littlehearts.org
Montgomery Heart Foundation for Cardiomyopathy
- 1830 E. Monument St./Suite 7300
- Baltimore, MD 21205
- Tel: (402)502-2578
- Fax: (443)287-4109
- Email: firstname.lastname@example.org
- Website: http://www.hopkinsmedicine.org/heart_vascular_institute/
NIH/National Heart, Lung and Blood Institute
- P.O. Box 30105
- Bethesda, MD 20892-0105
- Tel: (301)592-8573
- Fax: (301)251-1223
- Email: email@example.com
- Website: http://www.nhlbi.nih.gov/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 4/6/2016
Copyright 2016 National Organization for Rare Disorders, Inc.
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