Opsoclonus-Myoclonus Syndrome

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Opsoclonus-Myoclonus Syndrome is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Opsoclonus-myoclonus syndrome (OMS) is an inflammatory neurological disorder, often identifiable as paraneoplastic. It is characterized by associated ocular, motor, behavioral, sleep, and language disturbances. The onset is usually abrupt, often severe, and it can become chronic.

Supporting Organizations

Dancing Eye Syndrome Support Trust

c/o The Secretary
4 Glen Douglas Road
Renfrewshire, PA16 9NP
Scotland
Tel: 1475794577
Fax: 1475794577
Email: support@dancingeyes.org.uk
Website: http://www.dancingeyes.org.uk

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

Movement Disorder Society

555 E. Wells Street
Suite 1100
Milwaukee, WI 53202-3823
Tel: (414)276-2145
Fax: (414)276-3349
Email: info@movementdisorders.org
Website: http://www.movementdisorders.org

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Website: http://www.ninds.nih.gov/

National Pediatric Neuroinflammation Organization, Inc.

12001 Research Parkway
Suite 236
Orlando, FL 32826
Tel: 877 359 8599
Fax: 877 369 8488
Email: omsusa@omsusa.org
Website: http://www.omsusa.org

OMSLife Foundation

PO Box 2899
Cypress, TX 77410
US
Email: Mike@Omslifefoundation.Org
Website: http://www.omslifefoundation.org/?q=en

Opsoclonus-Myoclonus Support Network, Inc.

2116 Casa Linda Dr.
West Covina, CA 91791
USA
Tel: (626)315-8125
Email: sandragreenberg@ hotmail.com

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  1/12/2016
Copyright  2016 National Organization for Rare Disorders, Inc.