Multiple Endocrine Neoplasia Type 1
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Multiple Endocrine Neoplasia Type 1 is not the name you expected.
Multiple endocrine neoplasia (MEN) type 1 is a rare genetic disorder in which benign (noncancerous) tumors arise from the cells of various glands of the endocrine system. The endocrine system is the network of glands that secrete hormones into the bloodstream where they travel to various areas of the body. These hormones regulate the chemical processes (metabolism) that influence the function of various organs and activities within the body. Hormones are involved in numerous vital processes including regulating heart rate, body temperature and blood pressure as well as cell differentiation and growth and also in modulation of several metabolic processes. In individuals with MEN type 1, benign tumors develop in multiple endocrine glands, most often the parathyroid, pancreas and pituitary glands. These affected glands secrete excessive amounts of hormones into the bloodstream, which can result in a variety of symptoms. Some benign tumors associated with MEN type 1 can become malignant (cancerous). MEN type 1 can run in families or can occur as the result of a new gene mutation in the affected person.
American Cancer Society, Inc.
- 250 Williams NW St
- Ste 6000
- Atlanta, GA 30303
- Tel: (404)320-3333
- Tel: (800)227-2345
- Website: http://www.cancer.org
American Multiple Endocrine Neoplasia Support
- 1027 Hampshire Drive
- Maryville, TN 37801
- Tel: (865)238-5872
- Fax: (865)238-5844
- Tel: (866)612-8579
- Email: Linda@hagemanfoundation.org
- Website: http://www.amensupport.org
Association for Multiple Endocrine Neoplasia Disorders (AMEND)
- The Warehouse
- No. 1 Draper Street
- Kent, TN4 0PG
- United Kingdom
- Tel: 441892516076
- Fax: 441892516076
- Email: firstname.lastname@example.org
- Website: http://www.amend.org.uk
Carcinoid Cancer Foundation
- 333 Mamaroneck Avenue #492
- White Plains, NY 10605
- Tel: (914)683-1001
- Fax: (914)683-0183
- Tel: (888)722-3132
- Email: email@example.com
- Website: http://www.carcinoid.org
Hormone Health Network Endocrine Society
- 2055 L Street NW
- Suite 600
- Washington, DC 20036
- Tel: (202)971-3636
- Fax: (202)736-9705
- Tel: (888)363-6274
- Email: firstname.lastname@example.org
- Website: http://www.hormone.org/
NET Patient Foundation
- Boxtrees Farm
- The Farm House
- Hockley Heath, B94 6EA
- United Kingdom
- Tel: 8004346476
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- Website: http://www.netpatientfoundation.org
NIH/National Institute of Diabetes, Digestive & Kidney Diseases
- Office of Communications & Public Liaison
- Bldg 31, Rm 9A06
- Bethesda, MD 20892-2560
- Tel: (301)496-3583
- Email: NDDIC@info.niddk.nih.gov
- Website: http://www2.niddk.nih.gov/
Pheo Para Troopers
- P.O. Box 140703
- Howard Beach, NY 11414
- Email: firstname.lastname@example.org
- Website: http://www.pheoparatroopers.org
- PO Box 1944
- Bristol, BS99 2UB
- United Kingdom
- Tel: 8454500376
- Fax: 1179330910
- Tel: 8454500375
- Email: email@example.com
- Website: http://www.pituitary.org.uk
Pituitary Network Association
- P.O. Box 1958
- Thousand Oaks, CA 91358
- Tel: (805)499-9973
- Fax: (805)480-0633
- Email: firstname.lastname@example.org
- Website: http://www.pituitary.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
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This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 4/24/2015
Copyright 2015 National Organization for Rare Disorders, Inc.
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