National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Mastocytosis is not the name you expected.
Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in the skin, bone marrow, and internal organs (liver, spleen, gastrointestinal tract and lymph nodes). Cases beginning during adulthood tend to be chronic and involve the bone marrow in addition to the skin, whereas, during childhood, the condition is often marked by skin manifestations with minimal to no internal organ involvement and can often resolve during puberty. In most adult patients, mastocytosis tends to be persistent, and may progress into a more advanced category in a minority of patients. Mastocytosis can be classified to a specific type depending on the patient's symptoms and overall presentation.
- American Society of Clinical Oncology
- 2318 Mill Road Suite 800
- Alexandria, VA 22314
- Tel: (571)483-1780
- Fax: (571)366-9537
- Tel: (888)651-3038
- Email: email@example.com
- Website: http://www.cancer.net/
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
MPN Education Foundation
- P.O. Box 4758
- Scottsdale, AZ 85261
- Email: firstname.lastname@example.org
- Website: http://mpninfo.org/
- P.O. Box 744
- Townsend, MA 1469
- Email: email@example.com
- Website: http://www.mastokids.org
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
- Information Clearinghouse
- One AMS Circle
- Bethesda, MD 20892-3675
- Tel: (301)495-4484
- Fax: (301)718-6366
- Tel: (877)226-4267
- Email: NIAMSinfo@mail.nih.gov
- Website: http://www.niams.nih.gov/
The Mastocytosis Society, Inc.
- PO Box 129
- Hastings, NE 68902-0129
- Email: firstname.lastname@example.org
- Website: http://www.tmsforacure.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 7/15/2015
Copyright 2014 National Organization for Rare Disorders, Inc.
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