National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Diencephalic Syndrome is not the name you expected.
Diencephalic syndrome is a rare disorder caused by a tumor that is usually located in the diencephalon, a portion of the brain just above the brainstem. The diencephalon includes the hypothalamus and the thalamus. Affected infants and young children may develop symptoms that include the failure to gain weight and grow as would be expected based upon age and gender (failure to thrive) and abnormal progressive thinness and weakness (emaciation). Affected infants and children may behave in an alert, happy and outgoing manner, which is in contrast to their outward appearance. Additional symptoms such as vomiting, vision abnormalities, headaches, and pallor can also develop. Diencephalic syndrome can progress to cause severe, life-threatening complications. Diencephalic syndrome is treated by surgery, radiation, and/or chemotherapy. The reason for the development of the tumor that causes diencephalic syndrome is unknown. Diencephalic syndrome was first described in the medical literature in 1951 by Dr. Russell.
American Cancer Society, Inc.
- 250 Williams NW St
- Ste 6000
- Atlanta, GA 30303
- Tel: (404)320-3333
- Tel: (800)227-2345
- Website: http://www.cancer.org
Brain Tumor Foundation for Children, Inc.
- 6065 Roswell Road Suite 505
- Atlanta, GA 30328-4015
- Tel: (404)252-4107
- Fax: (404)252-4108
- Email: email@example.com
- Website: http://www.braintumorkids.org
Children's Brain Tumor Foundation
- 274 Madison Avenue, Suite 1004
- New York, NY 10016
- United States
- Tel: (212)448-1595
- Fax: (212)448-1022
- Tel: (866)228-4673
- Email: firstname.lastname@example.org
- Website: http://www.cbtf.org
Friends of Cancer Research
- 1800 M Street NW
- Suite 1050 South
- Washington, DC 20036
- Tel: (202)944-6700
- Email: email@example.com
- Website: http://www.focr.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
- 4340 East West Highway Ste 950
- Bethesda, MD 20814
- Tel: (301)202-3811
- Fax: (301)202-3813
- Tel: (888)598-3789
- Email: firstname.lastname@example.org
- Website: http://www.hydroassoc.org
National Brain Tumor Society
- 55 Chapel Street
- Suite 200
- Newton, MA 02458
- Tel: (617)924-9997
- Fax: (617)924-9998
- Tel: (800) 770-8287
- Email: email@example.com
- Website: http://www.braintumor.org
National Cancer Institute
- 6116 Executive Blvd Suite 300
- Bethesda, MD 20892-8322
- Tel: (301)435-3848
- Tel: (800)422-6237
- Email: firstname.lastname@example.org
- Website: http://www.cancer.gov
National Hydrocephalus Foundation
- 12413 Centralia Rd.
- Lakewood, CA 90715-1653
- Tel: (562)924-6666
- Fax: (562)924-6666
- Tel: (888)857-3434
- Email: email@example.com or firstname.lastname@example.org
- Website: http://www.nhfonline.org
- 98 Random Farms Drive
- Chappaqua, NY 10514
- Email: email@example.com
- Website: http://www.fightplga.org/
Pediatric Brain Tumor Foundation
- 302 Ridgefield Court
- Asheville, NC 28806
- Tel: (828)665-6891
- Fax: (828)665-6894
- Tel: (800)253-6530
- Email: firstname.lastname@example.org
- Website: http://www.pbtfus.org
Rare Cancer Alliance
- 1649 North Pacana Way
- Green Valley, AZ 85614
- Website: http://www.rare-cancer.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 3/16/2016
Copyright 2016 National Organization for Rare Disorders, Inc.
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