Dermatitis Herpetiformis

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Dermatitis Herpetiformis is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Dermatitis herpetiformis, also known as Duhring disease, is a rare, chronic, skin disorder characterized by the presence of groups of severely itchy (pruritic) blisters and raised skin lesions (papules). These are more common on the knees, elbows, buttocks and shoulder blades. The exact cause of this disease is not known although it is frequently associated with the inability to digest gluten (gluten sensitive enteropathy [GSE] or celiac sprue).

Supporting Organizations

Australasian Blistering Diseases Foundation

St. George Hospital
Department of Dermatology
Sydney, NSW 2217
Australia
Tel: 02 9113 2543
Fax: 02 9113 2886
Email: dermsec@sesiahs.health.nsw.gov.au
Website: http://blisters.org.au/

Coeliac Society of Australia Inc.

Suite 1, 41 - 45 Pacific Highway
Waitara, NSW 2077
Australia
Tel: 294875088
Fax: 294875177
Tel: 1800458836
Email: info@coeliacsociety.com.au
Website: http://www.coeliacsociety.com.au

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

Gluten Intolerance Group of North America

31214 124th Ave SE
Auburn, WA 98092
Tel: (253)833-6655
Fax: (253)833-6675
Email: info@gluten.net
Website: http://www.gluten.net

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases

Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
Email: NIAMSinfo@mail.nih.gov
Website: http://www.niams.nih.gov/

National Foundation for Celiac Awareness

P.O. Box 544
224 South Maple Street
Ambler, PA 19002
Tel: (215)325-1306
Fax: (215)643-1707
Email: info@beyondceliac.org
Website: http://www.CeliacCentral.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  1/29/2008
Copyright  2005 National Organization for Rare Disorders, Inc.