National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Cicatricial Alopecia is not the name you expected.
Cicatricial alopecias are classified as primary or secondary. This discussion is confined to the primary cicatricial alopecias, in which the hair follicle is the target of a destructive inflammatory process. In secondary cicatricial alopecias, destruction of the hair follicle is incidental to a non-follicle-directed process or external injury, such as severe infections, burns, radiation, or tumors.
Primary cicatricial alopecia refers to a diverse group of rare disorders that destroy the hair follicle, replace it with scar tissue, and cause permanent hair loss. Hair loss can be gradual, without symptoms, and unnoticed for long periods. In other cases, the hair loss may be associated with severe itching, pain and burning, and progress rapidly. Cicatricial alopecia occurs in otherwise healthy men and women of all ages and is seen worldwide.
American Academy of Dermatology
- 930 East Woodfield Road
- Schaumburg, IL 60173
- Tel: (847)330-0230
- Fax: (847)240-1859
- Tel: (888)462-3376
- Email: MRC@aad.org
- Website: http://www.aad.org
Cicatricial Alopecia Research Foundation (CARF)
- 330 W State Street
- Geneva, IL 60134
- Tel: (310)801-3450
- Email: email@example.com
- Website: http://www.carfintl.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
North American Hair Research Society
- Dept. of Dermatology Medical Center Blvd.
- Walke University School of Medicine
- Winston-Salem, NC 27157
- Tel: (336)776-2768
- Fax: (336)776-7732
- Email: firstname.lastname@example.org
- Website: http://www.nahrs.org/home/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 4/21/2016
Copyright 2016 National Organization for Rare Disorders, Inc.
PeaceHealth endeavors to provide comprehensive health care information, however some topics in this database describe services and procedures not offered by our providers or within our facilities because they do not comply with, nor are they condoned by, the ethics policies of our organization.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.