Cicatricial Alopecia

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Cicatricial Alopecia is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Cicatricial alopecias are classified as primary or secondary. This discussion is confined to the primary cicatricial alopecias, in which the hair follicle is the target of a destructive inflammatory process. In secondary cicatricial alopecias, destruction of the hair follicle is incidental to a non-follicle-directed process or external injury, such as severe infections, burns, radiation, or tumors.

Primary cicatricial alopecia refers to a diverse group of rare disorders that destroy the hair follicle, replace it with scar tissue, and cause permanent hair loss. Hair loss can be gradual, without symptoms, and unnoticed for long periods. In other cases, the hair loss may be associated with severe itching, pain and burning, and progress rapidly. Cicatricial alopecia occurs in otherwise healthy men and women of all ages and is seen worldwide.

Supporting Organizations

American Academy of Dermatology

930 East Woodfield Road
Schaumburg, IL 60173
USA
Tel: (847)330-0230
Fax: (847)240-1859
Tel: (888)462-3376
Email: MRC@aad.org
Website: http://www.aad.org

Cicatricial Alopecia Research Foundation (CARF)

330 W State Street
Geneva, IL 60134
USA
Tel: (310)801-3450
Email: info@carfintl.org
Website: http://www.carfintl.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

North American Hair Research Society

Dept. of Dermatology Medical Center Blvd.
Walke University School of Medicine
Winston-Salem, NC 27157
Tel: (336)776-2768
Fax: (336)776-7732
Email: amcmicha@wfubmc.edu
Website: http://www.nahrs.org/home/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  3/5/2012
Copyright  2012 National Organization for Rare Disorders, Inc.