Primary Biliary Cholangitis
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Primary Biliary Cholangitis is not the name you expected.
Primary biliary cholangitis (PBC) is a chronic progressive liver disorder that primarily affects females and typically becomes apparent during middle age. Obstruction of the small bile ducts is accompanied by yellow discoloration of the skin (jaundice). Excessive amounts of copper accumulate in the liver, and fibrous or granular hardening (induration) of the soft liver tissue develops. The course of primary biliary cholangitis is divided into four progressive stages. Although the exact cause of primary biliary cholangitis is unknown, possible immunological, autoimmune, genetic, and/or environmental factors are under investigation as potential causes of the disorder.
American Autoimmune & Related Diseases
- 22100 Gratiot Ave.
- Eastpointe, MI 48021
- Tel: (586)776-3900
- Fax: (586)776-3903
- Tel: (800)598-4668
- Email: firstname.lastname@example.org
- Website: http://www.aarda.org/
American Liver Foundation
- 39 Broadway, Suite 2700
- New York, NY 10006
- Fax: (212)483-8179
- Tel: (800)465-4837
- Email: http://www.liverfoundation.org/contact/
- Website: http://www.liverfoundation.org
Canadian PBC Society
- 4936 Yonge Street, Suite 221
- Toronto, Ontario M2N6S3
- Tel: 416-440-0917
- Fax: 705-456-9872
- Tel: 1-866-441-3643
- Email: email@example.com
- Website: http://www.pbc-society.ca/
European Society for Immunodeficiencies
- 1-3 rue de Chantepoulet
- Geneva, CH 1211
- Tel: 410229080484
- Fax: 41229069140
- Email: firstname.lastname@example.org
- Website: http://www.esid.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
NIH/National Institute of Diabetes, Digestive & Kidney Diseases
- Office of Communications & Public Liaison
- Bldg 31, Rm 9A06
- Bethesda, MD 20892-2560
- Tel: (301)496-3583
- Email: NDDIC@info.niddk.nih.gov
- Website: http://www2.niddk.nih.gov/
Primary Biliary Cholangitis Organization
- 1430 Garden Road
- Pearland, TX 77581
- Tel: (281)997-1516
- Email: email@example.com
- Website: http://www.pbcers.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 4/18/2016
Copyright 2007 National Organization for Rare Disorders, Inc.
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