Status Epilepticus

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Status Epilepticus is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Status epilepticus (SE) is considered a neurological emergency. Left untreated (or undertreated), prolonged seizures can cause permanent neurological injury or death. Rapid treatment must be initiated. If initial agents fail, it may be necessary to induce an iatrogenic coma. In any case, the person in status epilepticus must be closely watched, and often requires continuous EEG in order to confirm that the seizures have stopped not only clinically but electrically as well.

Supporting Organizations

AED Pregnancy Registry - Massachusetts General Hospital

121 Innerbelt Road, Room 220
Somerville, MA 2143
Tel: (617)724-9550
Fax: (617)724-8307
Tel: (888)233-2334
Email: holmes.lewis@mgh.harvard.edu
Website: http://www.aedpregnancyregistry.org

American Epilepsy Society

135 South LaSalle Street
Suite 2850
Chicago, IL 60603
Tel: 312-883-3800
Email: emurray@aesnet.org
Website: http://www.aesnet.org

CURE: Citizens United for Research in Epilepsy

430 W. Erie
Suite Suite 210
Chicago, IL 60654
Tel: (312)765-7118
Fax: (312)255-1801
Tel: (800)765-7118
Email: info@CUREepilepsy.org
Website: http://www.CUREepilepsy.org

Child Neurology Foundation

201 Chicago Ave, #200
Minneapolis, MN 55415
USA
Tel: (952)641-6100
Fax: (952)881-6276
Tel: (877)263-5430
Email: jstone@childneurologyfoundation.org
Website: http://www.childneurologyfoundation.org

Epilepsy Canada

2900 John St., Suite 402
Markham
Ontario, L3R 5G3
Canada
Fax: 9055139461
Tel: 8777340873
Email: epilepsy@epilepsy.ca
Website: http://www.epilepsy.ca

Epilepsy Foundation

8301 Professional Place
Landover, MD 20785-7223
Tel: (866)330-2718
Fax: (877)687-4878
Tel: (800)332-1000
Email: ContactUs@efa.org
Website: http://www.epilepsyfoundation.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

LGS Foundation, Inc.

192 Lexington Avenue
New York, NY 10016
Tel: (718)374-3800
Email: info@lgsfoundation.org
Website: http://www.lgsfoundation.org

March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Email: AskUs@marchofdimes.org or preguntas@nacersano.org
Website: http://www.marchofdimes.org and nacersano.org

Matthew's Friends

St. Piers Lane
Lingfield
Surrey, RH7 6PW
United Kingdom
Tel: 1342836571
Fax: 7884054811
Tel: 7884054811
Email: enq@matthewsfriends.org
Website: http://www.matthewsfriends.org

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Website: http://www.ninds.nih.gov/

New Horizons Un-Limited, Inc.

811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: horizons@new-horizons.org
Website: http://www.new-horizons.org

Organisation For Anti-Convulsant Syndrome

23 Morriston Close
South Oxhey
Watford, WD196UB
United Kingdom
Tel: 4402083869271
Email: OACSsecretary@gmail.com
Website: http://www.oacscharity.org

PHP - Parents Helping Parents, Inc.

Sobrato Center For Nonprofits San Jose
1400 Parkmoor Avenue,
Santa Clara, CA 95126
USA
Tel: (408)727-5775
Fax: (408)286-1116
Tel: (866)747-4040
Email: info@php.com
Website: http://www.php.com

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  1/3/2007
Copyright  2007 National Organization for Rare Disorders, Inc.