National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Scleroderma is not the name you expected.
Scleroderma is a rare autoimmune connective tissue disorder characterized by abnormal thickening of the skin. Connective tissue is composed of collagen, which supports and binds other body tissues. There are several types of scleroderma. Some types affect certain, specific parts of the body, while other types can affect the whole body and internal organs (systemic). Scleroderma is also known as progressive systemic sclerosis. The exact cause of scleroderma is unknown.
American Autoimmune & Related Diseases
- 22100 Gratiot Ave.
- Eastpointe, MI 48021
- Tel: (586)776-3900
- Fax: (586)776-3903
- Tel: (800)598-4668
- Email: firstname.lastname@example.org
- Website: http://www.aarda.org/
- Website: https://www.facebook.com/autoimmunityforum
European Society for Immunodeficiencies
- 1-3 rue de Chantepoulet
- Geneva, CH 1211
- Tel: 410229080484
- Fax: 41229069140
- Email: email@example.com
- Website: http://www.esid.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
Global Fibrosis Foundation
- Yale Dermatopathology Service
- 15 York Street, LMP 5031
- New Haven, CT 06520-8059
- Tel: (727)433-8180
- Email: firstname.lastname@example.org
- Website: http://www.globalfibrosis.com
International Scleroderma Network
- 7455 France Ave So #266
- Edina, MN 55435-4702
- Tel: (952)583-5735
- Tel: (800)564-7099
- Email: email@example.com
- Website: http://www.sclero.org
Juvenile Scleroderma Network, Inc.
- 1204 W. 13th Street
- San Pedro, CA 90731
- Tel: (310)519-9511
- Fax: (310)519-9511
- Tel: (866)338-5892
- Email: firstname.lastname@example.org
- Website: http://www.jsdn.org
Lupus Society of Alberta
- Suite 200, 1301 - 8 St. SW
- Calgary Alberta, T2R 1B7
- Tel: 4032287956
- Fax: 4032287853
- Tel: 8882429182
- Email: email@example.com
- Website: http://www.lupus.ab.ca
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
- Information Clearinghouse
- One AMS Circle
- Bethesda, MD 20892-3675
- Tel: (301)495-4484
- Fax: (301)718-6366
- Tel: (877)226-4267
- Email: NIAMSinfo@mail.nih.gov
- Website: http://www.niams.nih.gov/
National Registry for Childhood Onset Scleroderma
- University of Pittsburgh
- Arthritis Institute
- Pittsburgh, PA 15261
- Tel: (412)383-8674
- Fax: (412)648-9643
- Tel: (800)603-8960
- Email: firstname.lastname@example.org
- Website: http://www.scleroderma.org/medical/juvenile_registry.shtm
- 300 Rosewood Drive, Suite 105
- Danvers, MA 1923
- Tel: (978)463-5843
- Fax: (978)463-5809
- Tel: (800)722-4673
- Email: email@example.com
- Website: http://www.scleroderma.org
Scleroderma Research Foundation
- 220 Montgomery Street
- Suite 1411
- San Francisco, CA 94104
- Tel: (415)834-9444
- Fax: (415)834-9177
- Tel: (800)441-2873
- Email: firstname.lastname@example.org
- Website: http://www.srfcure.org/home
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 12/14/2009
Copyright 2007 National Organization for Rare Disorders, Inc.
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