Romano Ward Syndrome
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Romano Ward Syndrome is not the name you expected.
Romano-Ward syndrome is an inherited heart (cardiac) disorder characterized by abnormalities affecting the electrical system of the heart. The severity of Romano-Ward syndrome varies greatly from case to case. Some individuals may have no apparent symptoms (asymptomatic); others may develop abnormally increased heartbeats (tachyarrhythmias) resulting in episodes of unconsciousness (syncope), cardiac arrest, and potentially sudden death. Romano-Ward syndrome is inherited as an autosomal dominant trait.
American Heart Association
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- Dallas, TX 75231
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- Website: http://www.heart.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
International Long QT Syndrome Registry
- Heart Research Follow-up Program
- Box 653
- Rochester, NY 14642-8653
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NIH/National Heart, Lung and Blood Institute
- P.O. Box 30105
- Bethesda, MD 20892-0105
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- Ronnerweg 2
- Nidau, 2560
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- Website: http://www.qtsyndrome.ch/index.html
Sudden Arrhythmia Death Syndromes Foundation
- 508 E. South Temple
- Suite 202
- Salt Lake City, UT 84102
- Tel: (801)531-0937
- Fax: (801)531-0945
- Tel: (800)786-7723
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- Website: http://www.sads.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 5/18/2008
Copyright 2003 National Organization for Rare Disorders, Inc.
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