This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. Founded 1969. Patient organization dedicated to helping renal patients and their families deal with the physical, emotional and social impact of kidney disease. Aim is to inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives. Provides education and support for kidney patients, including those with reduced kidney function, on dialysis and transplant patients. Offers various educational materials, a bimonthly magazine, electronic newsletters and an annual patient meeting.
American Assn. of Kidney Patients
2701 N. Rocky Point Drive, Ste 150
Tampa, FL 33607
Voice: 1-800-749-2257 or 813-636-8100 (Mon.-Fri., 8:30am-4:30pm EST)
International. 55 volunteer Friends chapters. Founded 1982. Funds research and provides emotional support and education for people with polycystic kidney disease and their families. Promotes public awareness. Holds medical seminars and fund-raisers. Newsletters and online educational tools.
8330 Ward Parkway, Ste. 400
Kansas City, MO 64114
Voice: 1-800-753-2873 or 816-931-2600
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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