This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Online. 1770+ members. Founded 2006. Provides support for parents whose children have been diagnosed or are experiencing issues such as attention deficit disorder/hyperactivity disorder, anxiety, autism spectrum disorders (including Asperger and persistent developmental delay), learning disabilities, speech and language delays, sensory integration dysfunction, reactive attachment disorder, post-traumatic stress disorder and oppositional defiant disorder.
International. Founded 1992. Organization run by and for autistic people. Provides peer support, tips for coping and problem-solving. Online listserv, advocacy, education, retreats/conferences, information and referrals.
Autism Network International
P.O. Box 35448
Syracuse, NY 13235-5448
Voice: 315-476-2462 (long-distance calls will be returned collect)
Online. Interactive webpage providing information and support for Autism and Asperger syndrome and related disorders. 2-day free trial, $35 annual dues. Includes local, national and international support groups, research papers and descriptions. Message boards, chatrooms, research projects, links to evaluators and other Asperger syndrome online resources. Forums for families affected by Asperger syndrome and Autism and the professionals working with them.
International. 27 regional and 10 online groups. Founded 2003. Support network for adults with a diagnosis on the autism spectrum of high functioning autism, Asperger syndrome or pervasive developmental disorder. Newsletter, literature, advocacy, information and referrals. Assistance in starting local chapters.
666 Broadway, Suite 825
New York, NY 10012
Online. Offers support to the family members of adult individuals with Asperger syndrome. Bulletin board, e-mail list and resources.
PO Box 514
Centerville, MA 02632
Online. 1400+ members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome and autism-spectrum disorder.
Online. 600 members. Founded 1999. Support for those parenting a child with autism. Deals with the day-to-day joys and challenges.
Online. 15,000+ members. Founded 1998. Discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets.
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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