Skip Navigation

Search Knowledgebase

Mental Retardation / Down Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Speaking For Ourselves

Model. 13 groups. Founded 1982. Self-help advocacy for people with developmental disabilities. Monthly chapter meetings. Members help each other resolve problems, gain self-confidence and learn leadership skills. Chapter development guidelines and newsletter.
Write:
Speaking for Ourselves
714 Market Street, Ste 326
Philadelphia, PA 19106
Voice: 1-800-867-3330 or 215-923-8600
Fax: 215-923-8601
Website: http://www.speaking.org
E-mail: info@speaking.org
Verified: 2/12/2013

The Arc

National. Over 700 chapters. Founded 1950. Provides support for people with intellectual and developmental disabilities and their families. Advocacy groups and direct services. Monthly e-newsletter. Chapter development guidelines. Local group information on website.
Write:
The Arc
1825 K Street NW, Ste 1200
Washington, DC 20006
Voice: 202-534-3700
Fax: 202-534-3731
Website: http://www.thearc.org
E-mail: info@thearc.org
Verified: 1/10/2013

People First

Model. 30 groups in Washington. 7 high school clubs. Founded 1977. Self-help advocacy organization created by and for people with developmental disabilities. Provides help in starting new chapters. Monthly e-newsletter called Chapter Chatter.
Write:
People First of Washington
P.O. Box 648
Clarkston, WA 99403-2079
Voice: 509-758-1123
Fax: 509-758-1289
Website: http://www.peoplefirstofwashington.org
E-mail: pfow@clarkston.com
Verified: 2/7/2013

VOR - Speaking Out for People with Intellectual and Developmental Disabilities

National. 130 affiliated groups. Founded 1983. Works to empower families of persons with intellectual and developmental disabilities through information and advocacy. Weekly e-mail updates and print newsletter for members. Networking, information and referrals, advocacy, phone support and conferences. Annual dues $40.
Write:
VOR
836 S. Arlington Heights Rd., #351
Arlington Heights, IL 60007
Voice: 1-877-399-4867
Fax: 605-499-1631
Website: http://www.vor.net
E-mail: thopp@vor.net
Verified: 1/15/2013

Down Syndrome and Autistic Spectrum Disorder

Online. 1400+ members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome autism spectrum disorder.
Website: http://groups.yahoo.com/group/ds-autism
E-mail: ds-autism-owner@yahoogroups.com
Verified: 1/23/2013

Regard Online

Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices.
Write:
BM Regard
London, UK WC1N 3XX
Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline
E-mail: secretary@regard.org.uk
Verified: 1/9/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.