This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International. 5 chapters. Founded 1981. Provides support and education to Turner syndrome patients and their families. Tapes, publications, referrals to U.S. and Canadian groups. Newsletter, pen pal program, chapter development guidelines and annual conference.
Turner Syndrome Society of Canada
30 Cleary Avenue, Room 9
Ottawa, CANADA, ON K2A 4A1
Voice: 1-800-465-6744 or 613-321-2267
National. Founded 1987. Support for individuals affected by Turner syndrome. Increases public awareness and promotes research about the disorder.
Turner Syndrome Society of the US
11250 West Rd. Ste. G
Houston, TX 77065
Voice: 1-800-365-9944 or 832-912-6006
National network. Founded 1989. Network and exchange of information for parents of children with Turner's syndrome. Information and referrals, phone support, pen pals, conferences, literature, annual convention and newsletter. Annual membership $35/yr. (US); $50/yr. (Canada); $60/yr. (overseas).
Turner Syndrome Support Network
c/o MAGIC Foundation
6645 W. North Ave.
Oak Park, IL 60302
Voice: 1-800-362-4423 or 708-383-0808
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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