Search Knowledgebase

Topic Contents

Trisomy

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

SOFT (Support Organization For Trisomy)

National. 50 chapters. Founded 1979. Support and education for families of children with trisomy 18, trisomy 13 and related genetic disorders (including trisomy 9). Education for professionals. Quarterly newsletter, pen pal program, phone network, regional gatherings, annual international conference and booklets. Online information on finding a local support group. Dues $25.
Write:
S.O.F.T., c/o Barbara VanHerreweghe
2982 So. Union St.
Rochester, NY 14624
Voice: Barbara VanHerreweghe, 585-594-4621 or 1-800-716-7638 (for families)
Fax: 585-594-1957
Website: http://www.trisomy.org
E-mail: barbsoft@rochester.rr.com
Verified: 7/17/2012

Trisomy 18 Foundation

Online. Support for parents and families of a child diagnosed with Trisomy 18. Message board and chatroom.
Website: http://www.trisomy18support.org
E-mail: t18info@trisomy18.org
Verified: 7/2/2012

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

Top of Page

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.