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International. Founded 2002. Offers support, data studies, research and education to the public, medical community and families with aniridia syndrome (Children born with multiple blinding eye and medical conditions). Provides medical and social conferences, newsletters, medical research for conditions wich makde up the condaition.
Write:
Aniridia Foundation International, c/o Univ. of VA School of Med.
P.O. Box 800715
Charlottesville, VA 22908-0715
Voice: 901-409-1600
Website: http://www.aniridia.net
E-mail: info@aniridia.net
Verified: 7/26/2012
International network. Founded 1995. Provides to the public and medical communities information on adverse allergic drug reactions. Aim is to quicken diagnoses to avoid permanent damage. Literature, phone support, chatroom, online group, moderated discussion group, information and referrals.
Write:
Stevens-Johnson Syndrome
P.O. Box 350333
Westminster, CO 80035
Voice: 303-635-1241
Fax: 303-648-6686
Website: http://www.sjsupport.org and http://www.sjskidssupport.org
E-mail: sjsupport@aol.com
Verified: 8/2/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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