This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National network. Founded 1988. Support, education, research and advocacy for persons with Pseudoxanthoma Elasticum, their families, interested others and professionals. Phone support, newsletter, information and referrals. Donations appreciated and tax-deductible.
8764 Manchester Rd., Suite 200
Saint Louis, MO 63144-2724
Voice: 314-962-0100 (voice/fax)
Fax: 314-962-0100 (voice/fax)
International. 50 affiliated groups. Founded 1995. Supports patients and educates clinicians. Offers support groups, listservs, literature, semi-annual newsletter, phone and mail contacts. Offers assistance in starting similar groups. Initiates, funds and manages research.
PXE International, Inc.
4301 Connecticut Ave. NW Suite 404
Washington, DC 20008-2369
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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