This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. Founded 2002. Offers support and information to those affected by primary lateral sclerosis and hereditary spastic paraplegia. Supports research. Offers regional and e-mail support groups, online chat group, newsletter and information.
Spastic Paraplegia Foundation, Inc.
PO Box 1208
Fortson, GA 31808
Online. 550+ members. Support, information and sharing of experiences for persons with amyotrophic lateral sclerosis (Lou Gehrig's disease) and motor neuron diseases, their families and friends. Also includes primary lateral sclerosis, progressive muscular atrophy and multifocal motor neuropathy.
Online. Opportunity for persons with primary lateral sclerosis or hereditary spastic paraplegia, progressive neuromuscular disorders, to share information and support via an online discussion group. Fosters support and an exchange of ideas among PLSand HSP patients, their relatives, caregivers and health care professionals.
PO Box 117
Sherman, CT 06784
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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