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National network. Founded 1999. Support and education for individuals, parents, caregivers and professionals dealing with Pierre Robin syndrome or sequence. Literature, newsletter, information, advocacy, online e-mail group and bulletin board. Outreach committee comprised of families worldwide available to correspond via mail, phone, in person or e-mail.
Pierre Robin Network
Quincy, IL 62305
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For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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