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International network. Founded 1992. Provides support for families affected by Niemann-Pick disease type A, B and C. Promotes and supports research. Provides newsletter, family directory, networking, family conference, phone support, information and referrals. Guidelines available to help start similar groups.
National Niemann-Pick Disease Foundation
PO Box 49
415 Madison Avenue
Ft. Atkinson, WI 53538
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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