This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. 21 regional groups. Founded 2005. Support for patients, caregivers, families, those who lost loved ones to amyloidosis and friends of amyloidosis patients. Also deals with multiple myeloma, peripheral neuropathy, familial amyloidosis and protein misfolding. Telephone support network, pen pal program, educational materials, national conference, advocacy, information and referrals. Online mutual aid activities include message board and mailing list. Assistance in starting and maintaining groups.
Amyloidosis Support Groups
232 Orchard Drive
Wood Dale, IL 60191
National. 150 support groups. Founded 1995. Provides support, education and advocacy for persons with peripheral neuropathy. Promotes and funds research into the cause and cure. Information, referrals, e-newsletter, literature, social media channels, referrals to support groups and doctors.
60 E. 42nd St., Room 942
New York, NY 10165
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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