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Marinesco-Sjogren Syndrome Support Group

Marinesco-Sjogren Syndrome

Self Help Clearinghouse

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Marinesco-Sjogren Syndrome Support Group

National network. Founded 2000. Support for families affected by Marinesco-Sjogren syndrome (MSS) a rare, genetic disorder characterized by ataxia, cataracts, small stature and retardation. Encourages research into the cause and cure. Information and referrals.
Write:
MSS Support Group
1640 Crystal View Circle
Newbury Park, CA 91320
Voice: 805-499-7410
Website: http://www.marinesco-sjogren.org
E-mail: mss@marinesco-sjogren.org
Verified: 2/1/2012

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For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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