This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International. Founded 1983. Purpose is to foster communication among families, promote a better understanding of the syndrome, provide medical and educational information, sponsor biennial International conferences, encouragement, financial support, clinical and medical research. Parents, family, friends, professionals and others who are interested in Lowe syndrome are welcome. Dues $25 annually (can be waived if parents are in need).
Lowe Syndrome Association
P.O. Box 864346
Plano, TX 75086-4346
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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