This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Online. A community of people whose lives are affected by celiac disease and gluten intolerance. Family and friends welcome. Meets Mon. 9-10pm EST (Scheduled Moderated Chat) and Wed. 8-10pm EST (Unmoderated Chat). Wait in chat room for others to arrive.
National. 150+ local CSA chapters and Resource Units. Founded 1969. Provides educational materials on celiac sprue, dermatitis herpetiformis and basics for the gluten free diet for patients, parents of children with celiac sprue and professionals. Children's camp during August in Rhode Island. CelKids network. Provides opportunities for support groups and networking with patients and professionals. Newsletter and annual conference. Group development guidelines.
Celiac Sprue Association / USA
P.O. Box 31700
Omaha, NE 68131-0700
National. 78 affiliated chapters. Founded 1976. Mutual support and information for celiac-sprue patients, families and health care professionals. Buddy system, visitation, phone help system, newsletter and participation in educational efforts. Also supports dermatitis herpetiformis, Crohn's disease, lactose intolerance and other food allergies.
American Celiac Society
P.O. Box 23455
New Orleans, LA 70183
National. Founded 1990. Creates awareness and provides services and support for patients, their families, medical and healthcare professionals seeking information about celiac disease/dermatitis herpetiformis and the gluten-free diet. Free information packets. Annual membership $40. Handbook 'Guidelines For a Gluten-Free Lifestyle' is included with annual membership or sold separately for $12. Members receive a quarterly newsletter and update notices of upcoming events. Brochure and quick start diet guide available.
Celiac Disease Foundation
20350 Ventura Blvd., Suite 240
Woodland Hills, CA 91364
National network. 75+ affiliated groups. Founded 1974. Provides support to persons with gluten intolerance, celiac disease, dermatitis herpetiformis, and other gluten sensitivities, through consumer and industry services and programs that positively promote healthy lives. Offers email support, news magazine ($35), information and referral, conferences, guidance to those starting groups, and group development guidelines. Registered Dietitians are on-staff and available for telephone calls during business hours.
Gluten Intolerance Group
31214 124th Ave SE
Auburn, WA 98092
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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