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Celiac Sprue
Self Help Clearinghouse
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Gluten Intolerance Group of North America
National network. 75+ affiliated groups. Founded 1974. Provides support to persons with gluten intolerance, celiac disease, dermatitis herpetiformis, and other gluten sensitivities, through consumer and industry services and programs that positively promote healthy lives. Offers email support, news magazine ($35), information and referral, conferences, guidance to those starting groups, and group development guidelines. Registered Dietitians are on-staff and available for telephone calls during business hours.
Write:
Gluten Intolerance Group
31214 124th Ave SE
Auburn, WA 98092
Voice: 253-833-6655
Fax: 253-833-6675
Website: http://www.gluten.net
E-mail: info@gluten.net
Verified: 7/27/2012
American Celiac Society/Dietary Support Coalition
National. 78 affiliated chapters. Founded 1976. Mutual support and information for celiac-sprue patients, families and health care professionals. Buddy system, visitation, phone help system, newsletter and participation in educational efforts. Also supports dermatitis herpetiformis, Crohn's disease, lactose intolerance and other food allergies.
Write:
American Celiac Society, c/o Mrs. Annette Bentley
P.O. Box 23455
New Orleans, LA 70183
Voice: Mrs. Annette Bentley 504-737-3293
Website: http://www.americanceliacsociety.org
E-mail: americanceliacsociety@yahoo.com
Verified: 7/24/2012
Celiac Disease Online Support Group
Online. A community of people whose lives are affected by celiac disease and gluten intolerance. Family and friends welcome. Meets Mon. 9-10pm EST (Scheduled Moderated Chat) and Wed. 8-10pm EST (Unmoderated Chat). Wait in chat room for others to arrive.
Website: http://forums.delphiforums.com/celiac/start
Verified: 8/15/2012
Celiac Sprue Association/United States of America, Inc.
National. 150+ local CSA chapters and Resource Units. Founded 1969. Provides educational materials on celiac sprue, dermatitis herpetiformis and basics for the gluten free diet for patients, parents of children with celiac sprue and professionals. Children's camp during August in Rhode Island. CelKids network. Provides opportunities for support groups and networking with patients and professionals. Newsletter and annual conference. Group development guidelines.
Write:
Celiac Sprue Association / USA
P.O. Box 31700
Omaha, NE 68131-0700
Voice: 1-877-272-4272
Fax: 402-643-4108
Website: http://www.csaceliacs.org
E-mail: celiacs@csaceliacs.org
Verified: 8/15/2012
Celiac Disease Foundation
National. Founded 1990. Creates awareness and provides services and support for patients, their families, medical and healthcare professionals seeking information about celiac disease/dermatitis herpetiformis. Free information packets. Annual membership $40. Handbook 'Guidelines For a Gluten-Free Lifestyle' is included with annual membership or sold separately for $10. Members receive a quarterly newsletter and update notices of upcoming events. Brochure and quick start diet guide available.
Write:
Celiac Disease Foundation
13251 Ventura Blvd., Suite 1
Studio City, CA 91604
Voice: 818-990-2354 (day)
Fax: 818-990-2379
Website: http://www.celiac.org
E-mail: cdf@celiac.org
Verified: 8/15/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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