This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Online. Provides support for parents, patients, physicians and researchers to promote the health and welfare of genetic mosaic patients and to improve patient-physician relations. Also provides support for XY/XO and various intersex conditions.
National network. Founded 1989. Network and exchange of information for parents of children with Turner's syndrome. Information and referrals, phone support, pen pals, conferences, literature, annual convention and newsletter. Annual membership $35/yr. (US); $50/yr. (Canada); $60/yr. (overseas).
Voice: 1-800-362-4423 or 708-383-0808
International. 5 chapters. Founded 1981. Provides support and education to Turner syndrome patients and their families. Publications, information book 'Turner Syndrome Across the Lifespan', referrals to U.S. and Canadian groups. Newsletter, website and Facebook page, local chapter activities and annual conference.
Turner Syndrome Society of Canada
30 Cleary Avenue, Room 9
Ottawa, ON K2A 4A1, CANADA
National. Founded 1987. Support for individuals affected by Turner syndrome. Increases public awareness and promotes research about the disorder.
Turner Syndrome Society of the US
11250 West Rd. Ste. G
Houston, TX 77065
Voice: 1-800-365-9944 or 832-912-6006
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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