This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Online. Support e-mail list offers information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia and myelofibrosis.
E-Mail: To subscribe e-mail: firstname.lastname@example.org
International. Empowers and educates patients and families through online and local mutual support groups, their website, a newsletter and conferences. The three main myeloproliferative neoplasms are Polycythemia Vera (PV), Essential Thrombocythemis (ET) and Primary Myelofibrosis (PMF).
MPN Research Foundation
180 N. Michigan Ave, Ste 1870
Chicago, IL 60601
Online network. 1800 members. Founded 1989. Support network enabling persons with myeloproliferative disease to share their experiences and problems. Publishes materials pertaining to MPD, newsletter, phone support, conferences, information and referrals. Online listserv to exchange e-mails about the disease.
115 E. 72nd St.
New York, NY 10021
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.com
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