This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International network. Provides support services to patients, families and medical professionals dealing with the many manifestations of Basal Cell Carcinoma Nevus Syndrome (aka Gorlin Syndrome or Nevoid Basal Cell Syndrome). Offers: online forum; Quarterly Advocate newsletter; annual retreats; interdisciplinary conferences; periodic educational regional meetings; for families, caregivers, healthcare professionals, to develop and encourage a working knowledge of this complex condition in order to understand treatment options; provide clinical trial enrollment opportunities; increase family history awareness and develop self-esteem.
BCCNS Life Support Network
PO Box 321
Burton, OH 44021
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
Copyright © 2013 American Self-Help Group Clearinghouse. All rights reserved.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.