This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Online. Provides support via an international e-mail based forum to exchange information and support for those who are diagnosed with ataxia. Open to patients, families and friends. Also has links to yahoo support group and other worldwide support groups online.
Online. Support for parents and guardians of children with Friedreich's Ataxia or other childhood onset ataxias.
International. 53 support groups. Founded 1957. Assists families with support programs, ataxia information and resources. Provides education for professionals and the public. Promotes research into causes and treatments of ataxia. Newsletter, assistance in starting support groups, organizing fundraisers, and various Fact Sheets are available.
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
Online. 1400 members. Provides support for persons living with ataxia. Offers chat room, forum. blogs and information for patients and their caregivers.
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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