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National. 22 regional groups. Founded 2005. Support, education and advocacy, for patients, caregivers, families, those who lost loved ones to amyloidosis and friends of amyloidosis patients. Also deals with multiple myeloma, peripheral neuropathy, familial amyloidosis and protein misfolding. Telephone support network, pen pal program, educational and awareness materials, national conference, advocacy, information and referrals. Online mutual aid activities include message board and mailing list. Assistance in starting and maintaining groups.
Amyloidosis Support Groups
232 Orchard Drive
Wood Dale, IL 60191
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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