This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. 72 affiliates. Founded 1961. Aims to improve the well-being of all blind or visually impaired people and their families through education, support and advocacy. National conference, information and referrals, phone support, state and special interest affiliates e.g. guide dog users, blind lawyers, teachers and students. Monthly magazine (available in Braille, half speed cassette, large print, data CD, online or via e-mail; free to members, all others pay $25 per format per year). College scholarships. Online job bank. Chapter development guidelines.
American Council of the Blind
2200 Wilson Blvd., Ste 650
Arlington, VA 22201
Voice: 1-800-424-8666 or 202-467-5081
National. 34 groups. Founded 1903. Support network for persons coping with sight loss. Sponsors support groups for elders and mixed ages. Outreach services and community volunteers.
MAB Community Services
200 Ivy St.
Brookline, MA 02446
National. 54 regional groups. Founded 1945. Support, information and outreach to blinded veterans including those who were blinded in combat and those suffering from age-related macular degeneration and other eye diseases. Help in obtaining prosthetic devices and accessing the latest technological advances to assist the blind. Information on benefits and rehabilitation programs. Quarterly newsletter. Regional meetings.
Blinded Veterans Association
477 H Street, NW
Washington, DC 20001
Voice: 1-800-669-7079 or 202-371-8880
National. 52 affiliates. Founded 1940. Serves as both an advocacy and a public information vehicle. Provides support and information on services and applicable laws. Student scholarships. Assists blind persons who are victims of discrimination. Literature, monthly meetings and magazine. Assistance in starting new groups.
National Federation of the Blind
200 E. Wells St.
Baltimore, MD 21230-4998
International. Founded 1979. Encourages low vision people to make full use of vision through use of equipment, technology and services. Education, advocacy, quarterly magazine, group development guidelines, scholarships, conferences, information and referrals.
2200 Wilson Blvd.
Arlington, VA 22201
National. 25 chapters. Founded 1983. Serves as both an advocacy and public information vehicle. Provides information on services available. Offers positive philosophy and insights into blindness and practical guidance in raising a blind child. 'Future Reflections' magazine, parent seminars, free parents' information packet, meetings and conventions. Dues $8.
National Organization of Parents of Blind Children
200 East Well St.
Baltimore, MD 21230
Voice: 410-659-9314 ext. 2287
Online. 841 members. Founded 1999. Provides a listserv for everyone interested in sharing and sourcing information relating to this genetic disorder.
National network. Founded 1986. Provides information and support to persons with keratoconus, an eye condition where the cornea progressively thins causing a cone-like bulge. Electronic newsletters, phone support, information and referrals. Online support group. Encourages research into cause and treatment.
National Keratoconus Foundation
6222 Wilshire Blvd. Ste. 260
Los Angeles, CA 90048
National. Founded 1914. Support for persons of all ages who are visually impaired, blind and those with additional disabilities. Telephone support network brings together parents from around the country whose children have the same condition (Retinopathy of Prematurity, Retinitis Pigmentosa, Cortical Visual Impairment, Leber Congenital Amaurosis CHARGE Syndrome, Hermansky Pudlak Syndrome, Autism Spectrum Disorders, Albinism, a group for siblings, and a group for blind teenagers planning to attend college) to speak with parents in the same situation. Newsletter and literature available on the website or in hard copy.
Jewish Guild Healthcare
15 West 65th Street
New York, NY 10023
Voice: 1-800-284-4422 or 212-769-7800. For direct information on the tele-support network call Dan Callahan 212-769-7815.
International. 134 chapters/affiliated groups. Founded 1995. Provides information and support for people who are affected by macular degeneration and similar retinal diseases. Large informational website, monthly webcasts, email discussion group, message board, telephone and live support groups, telephone help line.
3600 Blue Ridge Blvd.
Grandview, MO 64030
Voice: 1-888-861-6148 or 816-761-7080
Online. Founded 2011. Provides support, facilitates discussion and promotes awareness of congenital and childhood glaucoma internationally. Contact via website's contact page.
Regional. 3 groups. Provides support, information and resources for individuals with (AMD) Age-related Macular Degeneration, a progressive eye condition that destroys all central vision. Family members and caregivers welcome. Online information, toll-free 'warmline', AMD Toolkit of large-print information, booklets, resources and monthly e-newsletter with updates about research and treatment. Provides help with starting local support groups.
Macular Degeneration Partnership
6222 Wilshire Blvd., Ste 260
Los Angeles, CA 90048
Online. Provides support via a discussion board for anyone living with ocular inflammatory disease. Provides information on coping to enhance your repertoire of coping skills so you can take control of your inflammatory eye disease.
Online. Provides support via an online forum for parents of children with Pars planitis (intermediate uveitis), an inflammatory eye disease that is potentially blinding.
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.com
Copyright © 2013 American Self-Help Group Clearinghouse. All rights reserved.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.