National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Retinoschisis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Congenital Retinal Cyst
- Congenital Vascular Veils in the Retina
- Giant Cyst of the Retina
- Vitreoretinal Dystrophy
Retinoschisis means splitting of the eye's retina into two layers. There are two forms of this disorder. The most common is an acquired form that affects both men and women. It usually occurs in middle age or beyond, although it can occur earlier, and it is sometimes known as senile retinoschisis. The other form is present at birth (congenital) and affects mostly boys and young men. It is known as juvenile, X-linked retinoschisis.
The disorder is characterized by a slow, progressive loss of parts of the field of vision corresponding to the areas of the retina that have become split. Either form may be associated with the development of saclike blisters (cysts) in the retina.
American Council of the Blind
- 2200 Wilson Boulevard
- Suite 650
- Arlington, VA 22201
- Tel: (202)467-5081
- Fax: (202)465-5085
- Tel: (800)424-8666
- Email: firstname.lastname@example.org
- Website: http://www.acb.org/
American Foundation for the Blind
- 2 Penn Plaza
- Suite 1102
- New York, NY 10121
- Tel: (212)502-7600
- Fax: (888)545-8331
- Tel: (800)232-5463
- Email: email@example.com
- Website: http://www.afb.org
Association for Macular Diseases, Inc.
- 210 E. 64th St.
- 8th Floor
- New York, NY 10065
- Tel: (212)605-3719
- Fax: (212)605-3795
- Email: firstname.lastname@example.org
- Website: http://www.macula.org/
Association for Retinopathy of Prematurity and Related Diseases
- 39650 Orchard Hill Place
- Novi, MI 48375
- Tel: (248)319-0161
- Fax: (248)788-4589
- Tel: (800)788-2020
- Email: email@example.com
- Website: http://www.ropard.org
Foundation Fighting Blindness
- 7168 Columbia Gateway Drive, Suite 100
- Columbia, MD 21046
- Tel: (410)423-0600
- Fax: (410)872-0574
- Tel: (800)683-5555
- Email: info@FightBlindness.org
- Website: http://www.blindness.org/
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
MD Support - The Eyes of the Macular Degeneration Community
- 3600 Blue Ridge Blvd
- Grandview, MO 64030
- Tel: (816)761-7080
- Fax: (816)761-7080
- Email: firstname.lastname@example.org
- Website: http://www.mdsupport.org
NIH/National Eye Institute
- 31 Center Dr
- MSC 2510
- Bethesda, MD 20892-2510
- United States
- Tel: (301)496-5248
- Fax: (301)402-1065
- Email: email@example.com
- Website: http://www.nei.nih.gov/
National Association for Parents of Children with Visual Impairments (NAPVI)
- P.O. Box 317
- Watertown, MA 02272-0317
- Tel: (617)972-7441
- Fax: (617)972-7444
- Tel: (800)562-6265
- Email: firstname.lastname@example.org
- Website: http://www.napvi.org
Retinitis Pigmentosa International
- P.O. Box 900
- Woodland Hills, CA 91365
- Tel: (818)992-0500
- Fax: (818)992-3265
- Tel: (800)344-4877
- Email: email@example.com
- Website: http://www.rpinternational.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 1/11/1970
Copyright 2004 National Organization for Rare Disorders, Inc.
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