National Organization for Rare Disorders, Inc.
It is possible that the main title of the report General Myoclonus is not the name you expected.
Myoclonus is the term used to describe the sudden, involuntary jerking of a muscle or group of muscles caused by muscle contractions (positive myoclonus) or muscle relaxation (negative myoclonus). The twitching or jerking of muscles cannot be controlled by the person experiencing it. Myoclonic jerks may occur infrequently or many times a minute. They sometimes occur in response to an external event or when a person attempts to make a movement. By itself, myoclonus may be seen as a symptom rather than a disease. To some degree, it may occur occasionally to otherwise healthy people. (For instance, hiccups may be considered a type of myoclonus.) In severe cases, it can interfere with movement control and balance, and limit various everyday activities such as eating or talking.
National Sleep Foundation
1010 N. Glebe Road
Arlington, VA 22201
8301 Professional Place
Landover, MD 20785-7223
Opsoclonus-Myoclonus Support Network, Inc.
2116 Casa Linda Dr.
West Covina, CA 91791
Email: sandragreenberg@ hotmail.com
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
National Pediatric Myoclonus Center
P.O. Box 19643
Springfield, IL 62794-9643
2900 John St., Suite 402
Ontario, L3R 5G3
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
Movement Disorder Society
555 E. Wells Street
Milwaukee, WI 53202-3823
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This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
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Last Updated: 1/20/2012
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