Topic Overview
What is hospice care?
Hospice care provides
medical services, emotional support, and spiritual resources for people who are
in the last stages of a terminal illness, such as cancer or heart failure.
Hospice care also helps family members manage the practical details and
emotional challenges of caring for a dying loved one.
Why might you choose hospice care?
The goal of
hospice treatment is to keep you comfortable and improve your quality of life
while you are dying. This philosophy is a shift from usual medical treatments,
in which health professionals strive to cure your disease. Hospice services are
not intended to speed up or prolong the dying process, but focus instead on
relieving pain and other symptoms. Hospice caregivers are concerned with
enhancing the quality of remaining life by keeping you as alert and comfortable
as possible in a familiar environment with family and friends.
Hospice programs offer services 24 hours a day, 7 days a week, in your
own home or in a hospice center. Some hospices also offer services in nursing
homes, long-term care facilities, or hospitals.
What kind of services are provided?
Hospice
services generally include:
- Basic medical care with a focus on pain and
symptom control.
- Medical supplies and equipment as
needed.
- Counseling and social support to help you and your family
with psychological, emotional, and spiritual issues.
- Guidance with
the difficult, but normal, issues of life completion and closure.
- A
break (respite care) for caregivers, family, and others who regularly care for
you.
- Volunteer support such as meal preparation or errand
running.
- Counseling and support for your loved ones after you die.
Who is involved with providing hospice services?
Most of the time, hospice care is provided in your home. A family member
or loved one will generally look after you much of the time. And someone from
your hospice team will usually visit you for an hour or so one or more times a
week. Your loved ones will work with the hospice team to give you the best care
possible.
Hospice teams usually include a doctor and nurses,
social workers, spiritual advisors, nursing
assistants, and trained volunteers. It may also include
pharmacists,
respiratory therapists, psychologists, psychiatrists,
music therapists,
physical therapists, and
occupational therapists. If you have an emergency or
get scared, you can call the 24-hour hospice number for advice. When necessary,
a nurse can usually come to your home at any time of the day or night.
Some people worry about losing touch with their regular, trusted doctor.
But being on hospice does not mean that you won't see your regular doctor. He
or she can work with others on your team to stay involved in your care.
Are you eligible for hospice services?
Eligibility
for most hospice programs is based on two criteria:
- Your condition is considered incurable. This is called a
terminal illness.
- Your doctor has indicated that your life
expectancy is 6 months or less if your illness runs its normal course. Usually
a form must be signed by your primary doctor as well as the medical director or
physician member of a hospice team.1
It can be hard for doctors to know how long a person
will live. Some people live longer than expected. If you live longer than 6
months, you can continue on hospice. If your illness gets better, you can stop
receiving hospice care.
Hospice care programs do not discriminate.
Care is provided regardless of age, sex, religion, diagnosis or type of health
problem, ethnic or cultural background, sexual orientation, or ability to
pay.
Payment for hospice services is covered through Medicare and
most Medicaid programs. Most, but not all, private insurance programs offer a
hospice benefit. It is important to research whether your health insurance
coverage offers hospice benefits and determine exactly which services are
included. Many hospice programs will research your medical coverage for you.
Frequently Asked Questions
Learning about hospice: | |
Getting treatment: | |