Klinefelter Syndrome

Other Places To Get Help

Organizations

American Association for Klinefelter Syndrome Information and Support (AAKSIS)
c/o Roberta Rappaport, 2945 West Farwell Avenue
Chicago, IL  60645-2925
Phone:	1-888-466-5747
E-mail:	KSinfo@aaksis.org
Web Address:	www.aaksis.org
The American Association for Klinefelter Syndrome Information and Support (AAKSIS) is a national volunteer association with the mission of education, support, research, and understanding of 47 XXY and its variants, collectively known as Klinefelter syndrome.
Klinefelter Syndrome and Associates (KS&A)
11 Keats Court
Coto de Caza, CA  92679
Phone:	1-888-XXY-WHAT (1-888-999-9428)
Fax:	(949) 858-3443
Web Address:	http://genetic.org
KS&A is focused on Knowledge, Support, and Action. It's a nonprofit education and support organization for people who have Klinefelter syndrome or other conditions caused by extra X and/or Y chromosomes.
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone:	(914) 997-4488
Web Address:	www.marchofdimes.com
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.
National Institute of Child Health and Human Development
P.O. Box 3006
Rockville, MD  20847
Phone:	1-800-370-2943
Fax:	1-866-760-5947 toll-free
TDD:	1-888-320-6942
E-mail:	NICHDInformationResourceCenter@mail.nih.gov
Web Address:	www.nichd.nih.gov
The National Institute of Child Health and Human Development (NICHD) is part of the U.S. National Institutes of Health. The NICHD conducts and supports research related to the health of children, adults, and families. NICHD has information on its Web site about many health topics. And you can send specific requests to information specialists.

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Author:	Debby Golonka, MPH	Last Updated: February 13, 2009
Medical Review:	Michael J. Sexton, MD - Pediatrics Stephen LaFranchi, MD - Pediatrics and Pediatric Endocrinology
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