Von Willebrand's Disease

Other Places To Get Help

Online Resource

KidsHealth for Parents, Children, and Teens
Nemours Foundation
Web Address:	www.kidshealth.org
This Web site provides a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This Web site offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly emails about your area of interest.

Organizations

MUMS: National Parent-to-Parent Network
150 Custer Court
Green Bay, WI  54301-1243
Phone:	1-877-336-5333 (parents only) toll-free (920) 336-5333
Fax:	(920) 339-0995
E-mail:	mums@netnet.net
Web Address:	www.netnet.net/mums
MUMS is a national parent-to-parent organization for parents or caregivers of a child with any disability, rare or common disorder, chromosomal abnormality, or health condition. The organization's main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or a similar condition.
National Heart, Lung, and Blood Institute (NHLBI)
P.O. Box 30105
Bethesda, MD  20824-0105
Phone:	(301) 592-8573
Fax:	(240) 629-3246
TDD:	(240) 629-3255
E-mail:	nhlbiinfo@nhlbi.nih.gov
Web Address:	www.nhlbi.nih.gov
The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating heart, lung, and blood diseases.
National Hemophilia Foundation (NHF)
116 West 32nd Street, 11th Floor
New York, NY  10001
Phone:	(212) 328-3700
Fax:	(212) 328-3777
E-mail:	HANDI@hemophilia.org
Web Address:	www.hemophilia.org
The National Hemophilia Foundation (NHF) is dedicated to the cures of inherited bleeding disorders and the prevention and treatment of their complications through education, advocacy, and research. The NHF has chapters throughout the country and a communications network that brings health professionals and the public the latest news about bleeding disorders. NHF's Web site provides information on the nature, symptoms, and treatments of many disorders.

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Author:	Debby Golonka, MPH	Last Updated: November 29, 2006
Medical Review:	Kathleen Romito, MD - Family Medicine Joseph O'Donnell, MD - Hematology/Oncology
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