Treatment Overview
Treatment for
Tourette's disorder (TD) focuses on managing
tics—helping your child and others cope with the tics.
Most cases of Tourette's disorder are mild and will not need medical treatment.
Educating yourself, your child, and people who have regular contact with your
child (such as teachers) about Tourette's disorder will help your child thrive.
Creating a supportive home and school environment where tics are accepted and
accommodated is also important.
Growth and development: Helping your child
build self-esteem
In some cases, such as when other conditions are present,
counseling may be helpful. If your child's tics affect his or her life
significantly,
medicines or behavior therapies such as
habit
reversal may be considered. The tics can be decreased, but there is no
cure for Tourette's disorder at this time.
Finding the right
treatment for Tourette's disorder can be time-consuming, especially if
other disorders and problems such as
attention deficit hyperactivity disorder (ADHD) are
present. The Tourette's disorder organizations listed in the Other Places to
Get Help section of this topic often can refer you to health professionals who
understand Tourette's disorder and the treatment available.
If
Tourette's disorder occurs along with other disorders or problems, work with
your child and doctor to find out which symptoms are causing the most
difficulties. Get input from teachers to give you a sense of what is happening
in your child's school environment. (Your child's symptoms may be quite
different in school than at home.)
Targeting specific problems is
important so you know which to treat first. Some medicines that are used to
treat tics may not help with any other condition.
Sometimes tics
can be reduced by first treating conditions that can occur along with TD. This
is because some conditions, such as behavioral problems, can make tics worse.
Conditions such as
depression or
anxiety usually need to be treated before TD.
For more information on conditions that often occur with Tourette's
disorder, see the following topics:
- Attention Deficit Hyperactivity Disorder
(ADHD)
- Obsessive-Compulsive Disorder
(OCD)
- Depression in Children and Teens
Because everyone who has Tourette's disorder has unique
tics and considerations, treatment must be tailored to fit the child.
- Children with mild tics may only need extra support and changes
made to their environment to avoid
triggering tics. Often tics will improve from making a
few changes at school, such as allowing your child to take tests untimed and in
a private room. It may also help to take steps to reduce problems that your
child has as a result of the tics, such as being embarrassed about having tics
when around other kids. For example, you may be able to talk with teachers
about showing a video to your child's classmates about Tourette's disorder.
- Children whose tics seriously affect their quality of life or
ability to function in school, at home, and in the community may benefit from
medicine or therapy to control their tics.
Both you and your child should work with your child's
doctor to manage Tourette's disorder. It is important that decision making is
shared as much as possible. Talk to a doctor about finding help for you and
your child together and individually.
As your child grows and goes
through different developmental stages, you will likely need to provide more
information about TD to encourage his or her understanding and good management
of the condition. Over time, you will also need to see whether adjustments are
needed in your child's school environment. Counseling may also be more
important for your child in some stages of development than others.
Initial treatment
Initial treatment for children
with
Tourette's disorder may include:
- Educating yourself and others.Understanding Tourette's disorder makes it possible to
recognize what your child is going through and to help others understand as
well. Your doctor will often start the educational process by talking with you
and your family about Tourette's disorder. The family can then keep learning
about the disorder through the resources that Tourette's disorder organizations
provide. Your doctor, local hospitals, and community outreach programs can help
you. For organizations that can help, see the Other Places to Get Help section
of this topic.
- Understanding how tics affect your child. Try to
identify what
triggers tics. It may help you to find patterns by
writing down when tics occur and what is going on in your child's life during
these times.
- Making changes. Your child may have fewer tics if
you and your child's other caregivers make
changes at home or school, such as alternating house
chores with free time or allowing for rest periods in school.
- Habit reversal. Your child may be able to control
problematic or embarrassing tics through
habit
reversal. Habit reversal focuses on creating an awareness of tic
behavior and a response to replace the tic.3 This
technique should be taught by a qualified professional. Ask your doctor for
recommendations.
- Counseling. During counseling sessions, a
qualified therapist helps your child cope with thoughts, feelings, or behaviors
relating to Tourette's disorder. Counseling cannot stop tics, but it may
decrease anxiety and help your child feel better about himself or herself.
Family members may be asked to participate in the counseling sessions.
Ongoing treatment
The symptoms of
Tourette's disorder change as your child gets older.
Tics come and go and seem worse at times. School performance and social
situations that involve talking with or in front of others can be especially
hard for your child. Ongoing treatment consists of matching your management of
the disorder to how the tics are currently affecting your child.
- Understand Tourette's disorder and continue to educate
yourself and others about the disorder.
- Be aware of how tics change
as your child grows. Continue to record the kinds of tics your child develops
and what seems to
trigger them.
- Make
changes at home or school when needed. A solid support
system is important for helping your child to successfully manage
tics.
- Continue counseling, if necessary. If appropriate, continue
to use
habit
reversal, which focuses on creating an awareness of tic behavior and
creating a response to replace the tic.
Treatment if the condition gets worse
If
Tourette's disorder is disrupting your child's life,
such as affecting his or her school work or ability to function at home or in
the community, consider:
- Making additional
changes at home or school to accommodate any changes
in how tics occur.
- More extensive counseling for everyone who is
affected by the disorder.
- Using
habit
reversal if taught by a well-trained professional. Habit reversal
focuses on creating an awareness of tic behavior and creating a response to
replace the tic.
- Using
medicine. Medicine can help make tics less severe or
occur less often. But some medicines have severe side effects. Always talk with
your child's doctor about the benefits and risks of using medicine.
Adult treatment
Because an adult with Tourette's
disorder has had the disease since childhood, treatment generally is well
established and depends on each adult's situation. It is important that those
who interact with the adult who has Tourette's disorder understand the disease
and that tics are not willful. Medicines may be necessary, as is counseling if
Tourette's disorder is severely affecting the adult's life.
Other treatment
Deep brain stimulation (DBS), in
limited studies, has shown promise as treatment for reducing tics in adults. In
this procedure, electrodes are surgically placed in certain areas of the brain,
such as the basal ganglia. These electrodes are connected to another device
that is surgically placed in the chest. The device in the chest sends signals
to the electrodes in the brain. This process can help prevent or limit tics.
Researchers continue to investigate this treatment and the risks of side
effects, such as bleeding in the brain or unwanted changes in motor function.
At this time, DBS is an experimental treatment and is not considered for use in
children.4