Spina Bifida

Other Places To Get Help

Organizations

Easter Seals
233 South Wacker Drive
Suite 2400
Chicago, IL  60606
Phone:	1-800-221-6827 (312) 726-6200
Fax:	(312) 726-1494
TDD:	(312) 726-4258
Web Address:	www.easterseals.com
Easter Seals provides information and services to help people with disabilities. Its programs include counseling, training, social clubs, camping, transportation, and referrals. Call for information on the nearest chapter or to receive a catalog of their publications and products.
National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD  20824
Phone:	1-800-352-9424 (301) 496-5751
TDD:	(301) 468-5981
Web Address:	www.ninds.nih.gov
The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.
KidsHealth for Parents, Children, and Teens
10140 Centurion Parkway North
Jacksonville, FL  32256
Phone:	(904) 697-4100
Fax:	(904) 697-4125
Web Address:	www.kidshealth.org
This Web site is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This Web site offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly e-mails about your area of interest.
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone:	(914) 997-4488
Web Address:	www.marchofdimes.com
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.
Spina Bifida Association
4590 MacArthur Boulevard NW
Suite 250
Washington, DC  20007
Phone:	1-800-621-3141 (202) 944-3285
Fax:	(202) 944-3295
E-mail:	sbaa@sbaa.org
Web Address:	www.sbaa.org
The Spina Bifida Association of America is a voluntary health agency that provides information about spina bifida to parents and health professionals to promote public awareness, advocacy, and research. This organization produces written and audiovisual materials, including a newsletter and brochures covering topics such as latex allergy and folic acid.

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Author:	Debby Golonka, MPH	Last Updated: April 3, 2009
Medical Review:	Michael J. Sexton, MD - Pediatrics Louis Pellegrino, MD - Developmental Pediatrics
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