Cleft Lip

Other Places To Get Help

Organizations

AboutFace USA
P.O. Box 75112
Las Vegas, NV  89136
Phone:	1-888-486-1209 (702) 769-9264
Fax:	(702) 341-5351
E-mail:	info@aboutfaceusa.org
Web Address:	www.aboutfaceusa.org
AboutFace is a nonprofit international organization that provides information, emotional support, and educational programs to people who have a facial disfigurement and to their families. They have information on cleft palate and cleft lip, including how to feed a baby who has these conditions.
Cleft Palate Foundation and American Cleft Palate-Craniofacial Association
1504 East Franklin Street
Suite 102
Chapel Hill, NC  27514-2820
Phone:	1-800-24-CLEFT (1-800-242-5338) (919) 933-9044
E-mail:	info@cleftline.org
Web Address:	www.cleftline.org
The Cleft Palate Foundation (CPF) is a nonprofit organization that provides information to parents of newborns with clefts and other craniofacial birth defects and to the health professionals who deliver and treat these infants. The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health professionals in over 40 countries who are involved in treatment and/or research of cleft lip, cleft palate, and other craniofacial conditions. Callers to the toll-free phone number can get medical information as well as resources to find regional parent-patient support groups.
La Leche League International (LLLI)
1400 North Meacham Road
Schaumburg, IL  60173-4808
Phone:	1-800-LA-LECHE (1-800-525-3243) (847) 519-7730
Fax:	(847) 519-0035
TDD:	(847) 592-7570
E-mail:	LaLecheEmail@aol.com
Web Address:	www.lalecheleague.org
La Leche League International (LLLI) offers information and encouragement—mainly through personal help—to all mothers who want to breast-feed their babies. It also offers support and information about breast-feeding babies with various disabilities, such as cleft lip or cleft palate. Call for information about a chapter in your area.
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone:	(914) 997-4488
Web Address:	www.marchofdimes.com
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.
Thousand Smiles Foundation
P.O. Box 606
Bonita, CA  91908-0606
Phone:	(619) 470-2885
Fax:	(619) 267-4553
E-mail:	information@thousandsmiles.org
Web Address:	www.thousandsmiles.org
This Rotary International organization provides information and resources on cleft lip, cleft palate, and dental services. A special part of its mission is providing free cleft lip and cleft palate correction and dental services to needy children in Mexico and other developing countries.
Wide Smiles
P.O. Box 5153
Stockton, CA  95205-0153
Phone:	(209) 942-2812
Fax:	(209) 464-1497
E-mail:	josmiles@yahoo.com
Web Address:	www.widesmiles.org
This organization offers materials, online chat groups, and other resources for parents of children with cleft lip and cleft palate.

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Author:	Debby Golonka, MPH	Last Updated: February 4, 2008
Medical Review:	Michael J. Sexton, MD - Pediatrics Arden Christen, DDS, MSD, MA, FACD - Dentistry
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