Sickle Cell Disease

Other Places To Get Help

Online Resource

Sickle Cell Disease Interactive Web site
SickleCellKids.org
Web Address:	http://www.sicklecellkids.org
This interactive, colorful Web site has quizzes, games, and other information to help children with sickle cell disease take care of themselves.

Organizations

American Academy of Family Physicians
P.O. Box 11210
Shawnee Mission, KS  66207-1210
Web Address:	www.familydoctor.org
The American Academy of Family Physicians produces a variety of health-related educational materials. Its Web site offers a health library and bulletin board, news, and comments sections.
American Pain Foundation
201 N. Charles Street
Suite 710
Baltimore, Maryland  21201-4111
Phone:	1-888-615-PAIN (1-888-615-7246)
E-mail:	info@painfoundation.org
Web Address:	http://www.painfoundation.org
The American Pain Foundation is an independent, nonprofit organization serving people with pain through information, advocacy, and support. Its mission is to improve the quality of life for people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management. The foundation encourages people with pain to learn all they can about pain and pain management treatment options, become their own best advocates, and demand the treatment they need and deserve.
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone:	(914) 997-4488
Web Address:	www.marchofdimes.com
The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.
National Heart, Lung, and Blood Institute (NHLBI)
P.O. Box 30105
Bethesda, MD  20824-0105
Phone:	(301) 592-8573
Fax:	(240) 629-3246
TDD:	(240) 629-3255
E-mail:	nhlbiinfo@nhlbi.nih.gov
Web Address:	www.nhlbi.nih.gov
The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating heart, lung, and blood diseases.
Sickle Cell Disease Association of America (SCDAA)
231 East Baltimore Street
Suite 800
Baltimore, MD  21202
Phone:	1-800-421-8453 (410) 528-1555
Fax:	(410) 528-1495
E-mail:	scdaa@sicklecelldisease.org
Web Address:	http://www.sicklecelldisease.org
The Sickle Cell Disease Association of America is a national membership organization that provides education, research updates, and support around sickle cell disease problems. Its Web site has the Sickle Cell Disease Forum for people of all ages to discuss concerns about sickle cell disease.

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Author:	Debby Golonka, MPH	Last Updated: January 19, 2007
Medical Review:	Anne C. Poinier, MD - Internal Medicine Martin Steinberg, MD - Hematology
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