Celiac DiseaseHome TreatmentHaving
celiac disease means that you will need to follow a
gluten-free diet for the rest of your life.
Permanently following a strict diet can be difficult, especially if you do not
have symptoms. But intestinal damage occurs when you eat foods with
gluten, regardless of whether you notice symptoms. For
more information, see: Celiac disease: Eating a gluten-free diet The following strategies may help you stay with your
gluten-free diet: - Seek guidance from a
registered dietitian, other health professionals, and
celiac disease support groups for ways to incorporate gluten-free foods. In the
beginning, it may be helpful to keep a food diary until you are more familiar
with planning meals without gluten.
- Be aware of foods that contain
hidden gluten. Read labels of prepared or processed
food carefully. For example, "hydrolyzed vegetable protein" may come from wheat
and contain gluten.
- When eating out, let your server know you have
special dietary needs. The Celiac Sprue Association has a "restaurant card"
that lists foods to avoid (see the Web site at www.csaceliacs.org or the Other
Places to Get Help section of this topic). Show this card to your server, who
can help you select gluten-free foods or direct the kitchen to specially
prepare a meal for you.
- Count calories and check your (or your
child's) weight weekly to ensure that enough nutrients are being
absorbed.
- Eat plenty of fruits and vegetables to avoid
constipation. If necessary, use gluten-free commercial fiber preparations, such
as those that contain rice bran.
Following a special diet may be especially hard for
children and teens, who often don't want to feel different from their friends.
Also, teens seem to have fewer symptoms than younger children after eating
gluten. But gluten, if eaten, will continue to damage the intestine. This is
why it is important for your teen to continue to follow a gluten-free diet. The
following strategies may help your child or teen to stick to a gluten-free
diet: - Contact your local hospital, dietitian, or
doctor for information about support groups in your area. Most people find
these groups helpful for discovering ways to help them deal with their
condition.
- Consider different ways to help your child follow the
gluten-free diet at school. Talk to teachers or school nurses about everyday
strategies. Find out what other kids are taking for lunch. For example, if
other kids are carrying cold lunches, find ways to pack similar gluten-free
cold lunches. If your child prefers a hot lunch, work with the school cafeteria
to see whether gluten-free choices are available. The more "normal" the diet
can seem, the better the chances that your child will follow
it.
- Let your child have some responsibility. With younger children,
make a game out of choosing foods that are gluten-free. Allow older children to
choose gluten-free foods.
Helping your teen follow a gluten-free diet usually
includes recognition of his or her increasing need for independence. Although
your teen will make his or her own food choices, talk realistically about the
consequences of eating foods with gluten.
- Set realistic goals.
Understand that food can be a part of socializing and fitting in. Your child
may accidentally (or on purpose) eat some foods that contain gluten. If your
child experiences symptoms after eating gluten, focus attention on how he or
she feels physically. Periodically remind your child about these reactions,
especially before going to a social event where foods containing gluten will
likely be served, such as a slumber party. Try to plan ahead for these
occasions by talking to friends' parents or preparing something gluten-free
that the group can eat.
Some people with celiac disease and their family members
may benefit from counseling. Consider talking to your doctor about counseling
if you need some extra help managing the emotional challenges that can happen
with celiac disease. Counseling can also help you learn ways to talk with your
children better and help them follow a gluten-free diet.
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