Cystic Fibrosis
Other Places To Get Help
Organizations
Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 Phone: 1-800-FIGHT CF (1-800-344-4823)
(301) 951-4422Fax: (301) 951-6378 E-mail: info@cff.org Web Address: www.cff.org This organization coordinates, supports, and accredits cystic fibrosis centers nationwide and provides funds and support for research.
Cystic Fibrosis Research Bayside Business Plaza 2672 Bayshore Parkway Suite 520 Mountain View, CA 94043 Phone: (650) 404-9975 Fax: (650) 404-9981 Web Address: www.cfri.org This organization funds research, provides educational and personal support, and spreads awareness about the genetic condition of cystic fibrosis. It also offers information and referrals to families living with cystic fibrosis.
Cystic Fibrosis Worldwide 210 Park Avenue Suite 267 Worcester, MA 01609 Phone: (508) 733-6120 E-mail: info@cfww.org Web Address: www.iacfa.org Cystic Fibrosis Worldwide (CFWW) promotes access to appropriate care and education to people around the world who have cystic fibrosis or who know someone with cystic fibrosis. CFWW works to provide a means to exchange information, research, and support the search for a cure. The Web site lists a variety of links to other cystic fibrosis organizations.
KidsHealth for Parents, Children, and Teens 10140 Centurion Parkway North Jacksonville, FL 32256 Phone: (904) 697-4100 Fax: (904) 697-4125 Web Address: www.kidshealth.org This Web site is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This Web site offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly e-mails about your area of interest.
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| Author: | Debby Golonka, MPH | Last Updated: June 26, 2007 |
| Medical Review: | Michael J. Sexton, MD - Pediatrics Susanna McColley, MD - Pediatric Pulmonology | |
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