Chronic Kidney DiseaseOther Places To Get HelpOrganizations| Medicare (Centers for Medicare and Medicaid
Services) | | 7500 Security Boulevard | | Baltimore, MD 21244-1850 | | Phone: | 1-800-MEDICARE (1-800-633-4227) toll-free for the Medicare speech-automated system 1-877-267-2323 toll-free for the Centers for Medicare and Medicaid Services | | TDD: | 1-866-226-1819 toll-free | | Web Address: | www.medicare.gov | | | This federal agency provides guides and other information on
Medicare. The Official U.S. Government Site for People With Medicare
(http://www.medicare.gov) provides useful information about Medicare
enrollment, coverage, billing, appeals, and drug discount cards, as well as the
latest Medicare policy changes impacting older Americans. Information on the
Medicare Hospice Benefit and how to choose a nursing home is also
included. |
| | National Institute of Diabetes and Digestive and Kidney
Diseases (NIDDK) | | National Institutes of Health | | 9000 Rockville Pike | | Bethesda, MD 20892-2560 | | Phone: | 1-800-860-8747 (301) 496-3583 | | Web Address: | www.niddk.nih.gov | | | The National Institute of Diabetes and Digestive and Kidney
Diseases (NIDDK) provides information and conducts research on a wide variety
of diseases as well as issues such as weight control and nutrition. |
| | National Kidney and Urologic Diseases Information
Clearinghouse | | 3 Information Way | | Bethesda, MD 20892-3580 | | Phone: | 1-800-891-5390 | | Fax: | (703) 738-4929 | | E-mail: | nkudic@info.niddk.nih.gov | | Web Address: | http://kidney.niddk.nih.gov | | | The National Kidney and Urologic Diseases Information
Clearinghouse (NKUDIC), a federal agency, is a service of the National
Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). NIDDK is part
of the National Institutes of Health under the U.S. Department of Health and
Human Services. The clearinghouse provides information about diseases of the
kidneys and urologic system to people with kidney and urologic disorders and to
their families, to health professionals, and to the public. NKUDIC answers
inquiries; develops, reviews, and distributes publications; and works closely
with professional and patient organizations and government agencies to
coordinate resources about kidney and urologic diseases. |
| | National Kidney Foundation | | 30 East 33rd Street | | New York, NY 10016 | | Phone: | 1-800-622-9010 (212) 889-2210 | | Fax: | (212) 689-9261 | | Web Address: | www.kidney.org | | | The National Kidney Foundation works to prevent kidney and urinary
tract diseases by supporting research and educating health professionals and
the public. Its Web site provides a wealth of materials, including printable
brochures, and a newspaper for patients and their families called
Family Focus. |
| | United Network for Organ Sharing
(UNOS) | | 700 North 4th Street | | Richmond, VA 23219 | | Phone: | 1-888-894-6361 | | Web Address: | www.unos.org | | | The United Network for Organ Sharing (UNOS) is a nonprofit
scientific and educational organization that administers the nation's only
Organ Procurement and Transplantation Network (OPTN). It was established by the
U.S. Congress in 1984. UNOS collects and manages data about every transplant
event occurring in the United States, facilitates the organ matching and
placement process, and brings together health professionals, transplant
recipients, and donor families to develop organ transplantation policy.
UNOS: - Matches donors to recipients and coordinates
the organ-sharing process 24 hours a day, 365 days a
year.
- Maintains the databases that contain all clinical transplant
data for every transplant event that occurs in the United
States.
- Performs data analyses, fills data requests, produces the
Annual and other data reports, and authors authoritative
publications.
- Monitors every organ match to ensure adherence to
UNOS policy, and works with the Board of Directors to develop equitable
policies that maximize the limited supply of organs.
- Offers support
to members of the transplant community. These services include seminar
planning, providing educational programs and workshops, and much more.
- Provides assistance to patients, family members, and friends, and
sets professional standards for efficiency and quality patient
care.
- Raises public awareness about the importance of organ
donation.
- Works to keep patients informed about transplant issues
and policies.
- Offers comprehensive travel and event planning to
assist organizations within the transplant community.
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