Self Help ClearinghouseVelo-Cardio-Facial Syndrome| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
Velo-Cardio-Facial Syndrome Educational Foundation, Inc.National network. Founded 1996. Support and resource network for families coping with velo-cardio-facial syndrome (aka Shprintzen syndrome, 22q11 Deletion syndrome). Provides family programs, parent-to-parent networking, educational materials, newsletter and annual conference. Write: Velo-Cardio-Facial Syndrome Educational Foundation, Inc. P.O. Box 874 Milltown, NJ 08850 Voice: 1-866-823-7335 Website: http://www.vcfsef.org E-mail: info@vcfsef.org Verified: 9/25/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
| |