Self Help Clearinghouse

Urea Cycle Disorders

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Urea Cycle Disorder Discussion Board

Online. Opportunity for parents caring for a child with a urea cycle disorder to discuss concerns and ideas. Goal is to increase awareness of urea cycle disorders in order to improve diagnosis.
Website: http://www.disc.yourwebapps.com/indices/157587.html
Verified: 10/9/2008

National Urea Cycle Disorders Foundation

National network. Founded 1989. Links families, friends and professionals who are dedicated to the identification, treatment and cure of urea cycle disorders, genetic disorders causing an enzyme deficiency in the urea cycle. Networks families together for support, educates professionals, public and supports research. Phone support, literature and newsletter. Dues $35.
Write:
Natioal Urea Cycle Disorders Foundation
75 South Grand Ave.
Pasadena, CA 91105
Voice: 1-800-386-8233
Fax: 626-578-0823
Website: http://www.nucdf.org
E-mail: info@nucdf.org
Verified: 9/26/2008

ASA Kids

Online. Opportunity for parents of children with argininosuccinic aciduria to come together for support and information. Discussion board, stories on affected children and links.
Website: http://disc.yourwebapps.com/indices/106610.html
Verified: 10/9/2008

TRUE Kids

(Transplanted to Resolve Ure-cycle Enzyme-deficiency) Online. Mutual support and information for families of transplanted children with urea cycle disorder.
Website: http://disc.yourwebapps.com/indices/153415.html
Verified: 10/9/2008

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The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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