Self Help ClearinghouseSpinal Muscular Atrophy| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
Families of S.M.A. (Spinal Muscular Atrophy)(MULTILINGUAL) International. 31 chapters. Founded 1984. Funding of research, support and networking for families affected by spinal muscular atrophy types I, II, III, adult onset and Kennedy's. Educational resources, group development guidelines, quarterly newsletter, pen pals, phone support and videotapes. Online message boards and kids corner support. Write: Families of SMA P.O. Box 196 Libertyville, IL 60048 Voice: 1-800-886-1762 Fax: 847-367-7623 Website: http://www.fsma.org E-mail: info@fsma.org Verified: 9/28/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
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