Self Help ClearinghouseReflex Anoxic Seizure Disorder|
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STARS-US (Syncope Trust And Reflex Anoxic Seizures)
National. Founded 2007. Network of parents and sufferers of syncope
and reflex anoxic seizure (characterized by temporary heart stoppage
and a seizure-like response to any unexpected stimuli), also known
as Stephenson's seizure, white breath holding or pallid infantile
syncope. Newsletter, networking, literature, phone support,
conferences, information and referrals. Online e-bulletin and
moderated message board. Support system and education for sufferers,
their families, medical community and general public. Offers
assistance in starting local chapters. Dues: $25/yr.
Write: Syncope Trust And Reflex Anoxic Seizures-US
P.O. Box 5507 Hilton Head Island, SC 29938
Voice: 843-785-4101
Website: http://www.stars-us.org
E-mail: rsmith@stars-us.org
Verified: 11/12/2007
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