Self Help ClearinghouseMuscular Dystrophy| This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site. |
Muscular Dystrophy AssociationNational. 200+ chapters. Founded 1950. Provides comprehensive medical services to persons with neuromuscular disease. Supports research into the causes, cures and treatments of neuromuscular disorders. Support programs include self-help groups, phone friends, pen pals and scheduled online chat sessions. Write: Muscular Dystrophy Association 3300 E. Sunrise Dr. Tucson, AZ 85718-3299 Voice: 1-800-572-1717 Fax: 520-529-5454 Website: http://www.mda.org E-mail: mda@mdausa.org Verified: 10/10/2008
Parent Project for Muscular Dystrophy Research, Inc.International network. Founded 1994. Support for parents of children with Duchenne and Becker muscular dystrophy. To improve the treatment, quality of life and long-term outlook for all individuals affected by DMD through research, advocacy, education and compassion. Provides user-friendly website with online forums, scientific and legislative conferences, newsletters, information on newest diagnosis, standards of care and research strategies. Write: Parent Project for MD Research 158 Linwood Plaza Fort Lee, NJ 07024 Voice: 1-800-714-5437 Fax: 201-944-9987 Website: http://www.parentprojectmd.org E-mail: info@parentprojectmd.org Verified: 10/14/2008
SMDI (Society for Muscular Dystrophy International)International network. Founded 1983. Purpose is to share and encourage the exchange of non-technical, neuromuscular and disability-related information. Referrals to support groups via networking website. Write: SMDI International P.O. Box 479 Bridgewater, NS Canada, B4V 2X6 Canada Voice: 902-685-3961 Fax: 902-685-3962 Verified: 10/10/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information. For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org Copyright © 2009 American Self-Help Group Clearinghouse. All rights reserved.
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